My advocacy journey began in 2014 when I launched A Flarey Tale Blog and Facebook page. I went on to build awareness walks, share my story through invisible the film and launch the FCSA. Somewhere along that path, I lost my voice. While I advocated for many, shared their stories and fought their battles; including one on behalf of my own son, my voice became silent.
Looking back now, there were several reasons for this. All of which I plan to share through this blog. I hope that by sharing my past traumas, personal struggles and how my voice aided me in healing, you will find the power of your voice and use it to uplift not only yourself but also our community and everyone that crosses your path. Our Stories matter and only through them can we prove to others that they are not alone. We must use the Power in our Voices and Stories to fight the injustices and structures that seek to keep us invisible!
Milly Velez
In Peace, Power and Progress
“There’s Power in allowing yourself to be known and heard. In owning your unique story, in using your authentic voice”~ Michelle Obama
On November 15, 2023 Tonix Pharmaceutical Holding Corp (Nasdaq: TNXP) announced the completion of Clinical Phase 3 study of TONMYA ™ (TNX-102 SL). Currently, there are three FDA approved medications for Fibromyalgia. It has been 15 years since the last medication was approved (Savella in 2009).
Read MoreThis Month we celebrate and recognize Women all over the world. However, today I want to focus on an iconic symbol of female resilience and empowerment that many have come to know and admire here in the United States of America.
Read MoreMildred was born and raised in the Bronx, New York. Prior to her 18th birthday she was able to check off all 10 points on a psychological assessment tool that gauges childhood trauma. She has survived sexual assault, domestic violence and homelessness. Her life experiences have propelled her to advocate for social and racial justice causes.
Read MoreYesterday, as I sat in the Church parking lot where the FCSA has their offices, I received a phone call. As I informed the caller- “we are a military family”, the sound of the Church bells ringing brought an immediate smile to my face. The joy came from realizing at that very moment, that my granddaughter, the child of two United States Marine Veterans was sitting behind me. Her Mom, my daughter, a Female Veteran was sitting beside me. I knew there was a message to be found in that perfectly timed moment.
Read MoreDo you know a child living in a low-income community?
Read MoreI was diagnosed with Fibromyalgia in 2007 after an emotional trigger caused my nervous system to enter a state of frenzy. As a child, teenager and young adult I experienced deep emotional and at times life-threatening trauma. I never invested the time to process any of it other than the time I was sent to a residential center for “troubled teens” and labeled “emotionally disturbed”.
Read MoreMi Voz is a podcast that discusses mental health, holistic healing and all things fibromyalgia related.
Through Mi Voz, host Milly Velez shares her perspective on the FCSA’s half functional with fibro podcast. A podcast hosted by the Fibromyalgia Care Society of America’s Fibro Youth Coordinators-Isabella Marquez and Katie Panaccia.
Milly will also discuss how embracing vulnerability has positioned her to publicly use her voice to share the decades of physical and emotional trauma that led to her fibromyalgia diagnosis, her breaking point and how a global pandemic brought it all full circle.
Read MoreHappy Woman’s History Month!
In honor of the month, I am sharing a piece of my story titled-Sweet 16, My Fibromyalgia Journey via Mi Voz Blog. I have safeguarded this piece of my story for over 16 years. Partly because fibro fog blocked it out and later because I was ashamed of how I would be perceived by others. But truth be told, once you begin to heal, several things happen…
Read MoreIn my most recent Mi Voz blog post, EPIGENETICS-MATERNAL DNA-ONE WOMAN, I discuss how my quest to understand a possible link between ancestral trauma and DNA, led me to review my ancestral roots beyond the three diagnosed generations of fibromyalgia in my family. I left off with an urge to explore possible connections between resiliency, trauma, and maternal lineage. If the resiliency that kept me through the trauma is inherited, then surely that in itself is worth more than Gold.
Read MoreAs many of you know, I believe that Fibromyalgia is a nervous system disorder where the root cause is Trauma. In my situation, chronic trauma stems from emotional and physical trauma that began in childhood/adolescence and continued through adulthood. Having survived a myriad of traumas in my life has led me on a quest to do my part in ensuring that future generations do not inherit what was handed down to me-No human should EVER have to endure so much pain!
Read MoreDid you know that trauma could be inherited? While some people inherit heirlooms, there are many groups of people that inherit generational trauma.
Read MoreI am still overwhelmed with emotion by all the love that the FCSA received during the month of June. The month commenced with the Ariagna Perrelo Civic association presenting me with a Woman of Distinction award on June 3rd. In my 25 years of serving multiple communities, this is the first public recognition I have received and my heart is still overjoyed by it! I received an honor for trailblazing the fibromyalgia community!! This is for my 5-year-old granddaughter, Audrey. I hope one day it reminds her that there is power in persevering.
Read MoreUse this resource guide and video links to access exercises for fibromyalgia pain to help work through some of the common physical symptoms of fibromyalgia.
Read MoreIf you’ve been canna-curious keep reading to the end to get endocannabinoid educated and register for a CBD-centered webinar this Wednesday with cannabis medicine specialist, Dr. Benjamin Caplan.
Read More2022 World Health Day!
Read MoreLearn which foods to avoid and which foods to embrace as we explore the connection between autoimmunity and inflammation
Read MoreHello Everyone!
As we continue on this journey to help our community of warriors, I cannot recall a more challenging time in my life or in the world to embark on new ventures. A pandemic, economic instability, and civil unrest added stress to our already heightened nervous systems. Knowing all of this, it became so much more important for me to figure out innovative ways to bring support, love, and healing to the lives of people like me living with fibromyalgia.
Ease your frustration from fibromyalgia flare-ups and face rashes with some simple skincare solutions.
Read MoreIf fibromyalgia is causing you persistent pain, then consider adding somatic movement to your wellness routine for relief.
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